Outside of my #Narcolepsy, #RLS, & #SleepApnea, I have lower back pains and a surgically repaired neck (titanium disk in neck). Does anyone recommend a mattress, or pillow, to help me be more comfortable while I sleep?
@Akshay_Kewlani @MentalHRetweet Agreed. I earned my superhero pants. And one day I'd like to be able to face my fears without falling asleep in the process #Narcolepsy ๐๐ค
Members of MyNarcolepsyTeam often say "I'm Fine" when they're NOT because most people don't understand their struggles with #narcolepsy. See what else they're sharing in the MyNarcolepsyTeam resources section:
Car Nap for Lunch! #dontjudgeme #sleepdisorders #thanksbob #sleepapnea #insomnia #narcolepsy #jknotnarcolepsy
Sorry for a delay in updates, we had to get some sleep and ended up passing out without meaning to.
Gotta love sleep attacks. :/
Anyway, trying to get my brainwires to connect, please standby. โจ- EJ
#SleepDisorders #IH #IdiopathicHypersomnia #Narcolepsy #SleepAttacks #Fatigue
๐ค๐จ LIVE in 5 minutes! #NarcolepsyNerdAlert, hosted by award-winning geek @RemRunner, kicks off at 1pm ET 1/27 on Facebook. Join us to explore unique aspects of the #narcolepsy experience. Today's topic: "Narcolepsy Roadmap." PLUS: prizes!
Tune in live:
Read our latest issue:
#ContraceptivePatch #Narcolepsy #CushingsDisease #GIST
At Harmony, we appreciate the many members of the #narcolepsy community who have shared their knowledge, experience, and stories to help educate others and raise awareness of this #raredisease. Learn more ๐ #WednesdayWisdom
#Narcolepsy
#Nevermore
#DENIMS
#LASTDANCE
#Bialystocks
#Nevermore
#ใซใใณใขใคใ
#ๅ
ใฎๆนใธ
There are over 300 Million people worldwide living with a rare disease.
Join in Raising awareness (info at )
#RareDiseaseDay #RareDisease #RareIsMany #RareIsStrong #RareIsProud #rare #ShowYourStripes #Narcolepsy #EhlersDanlosSyndrome #ImmuneDeficiency
Thank you @anthonypadilla for covering #narcolepsy in your amazing "I Spent a Day with" series. I wrote to Anthony in November suggesting this topic, and it's SO cool to see this become a reality!
"Don't wish to for things to be easier...wish that you were better." - Jim Rohn
#quoteoftheday #jimrohn #quote #WordOfTheDay #bloggers #narcolepsy #MotivationalQuotes
Pandemic Linked With Increase in Nocturnal Sleep Time, Daytime Napping in Patients With #Narcolepsy Type 1:
Studying #narcolepsy patients during one month of pandemic-related lockdown in Italy, researchers noted that patients working or studying from home exhibited an increase in nocturnal sleep time, reduced daytime sleepiness, and significant weight gain.
#StorySharing continues this Sunday, 1/31 at 8pm ET with #RisingVoicesofNarcolepsy speaker, olympic weightlifter, and future veterinary neurologist Amanda! Tune in to Amanda's #narcolepsy story LIVE on Project Sleep's Facebook page.
Learn more and share:
Prescription Adderallยฎ is the most abused medication among high school and college students. An abuse-deterrent solution is needed! #ADHD #Narcolepsy #StimulantAbuse #AbuseDeterrent
#Narcolepsy: Symptoms, Determining the Cause, and Treatment Alternatives
s/o @anthonypadilla giving my people some much-needed love #narcolepsy #narcoleptic
๐ด Strategies for developing an optimal treatment plan for adult #narcolepsy. Earn #CME in these virtual case-based scenarios.
#SleepHealth #PsychTwitter #NeuroTwitter
"You're just doing too much... Somehow I knew that wasn't the full story."
#RisingVoicesofNarcolepsy speaker Kristen spent 25+ years being misdiagnosed, and now uses her pageant platform to spread critical #narcolepsy awareness. Video available now!
reason as I get older to stop being so hard on myself.
I used to get so upset with how much sleep I needed. Embarassed / frustrated and hiding it at school and work when I'd fall asleep.
#ActuallyAutistic #narcolepsy
๐ค๐จ #NarcolepsyNerdAlert! Our new broadcast series starts THIS Wed, 1/27 at 1pm ET. Join @RemRunner and fellow #NarcolepsyNerds for our first topic: Narcolepsy Roadmap. Because navigating #narcolepsy doesn't come with a map, but it should!
More info:
#Narcolepsy is a neurologic condition where the brain is unable to control sleep-wake cycles normally that can impact a personโs everyday life. View real patient stories and learn more about this #sleepdisorder here:
Sleep experts Drs Roth and Winkelman explore the differential diagnosis and treatment of narcolepsy in this CME journal activity.
#FREE #CME #sleep #narcolepsy
This is an interesting open access review. Sleep paralysis is an interesting phenomenon - common #sleep symptom in community, connected to #narcolepsy, relevant to #PTSD
@ProfAMGregory @UniofOxford @OxSCNi
Almost slept through the night! Then I randomly woke up at 5:30 ๐
At least it wasn't 5am...so small progress ๐ค๐คท
Back to bed to recharge, hopefully I can have a productive day.
#Insomnia #narcolepsy #sleepwakedisorder
#sleepdisturbance
#lowonspoons #spoons
Does anyone else take medicine to help them sleep every night?
๐ด Strategies for developing an optimal treatment plan for adult #narcolepsy. Earn #CME in these virtual case-based scenarios.
#SleepHealth #PsychTwitter #NeuroTwitter
#RisingVoicesofNarcolepsy speaker Kristen shares her #narcolepsy story #live in one hour, 8pm ET 1/24! Stick around for our Q&A session after -- and if you can't make it tonight, we'll have a recording available.
See you for #StorySharing soon!
I am doomed, utterly doomed. @sleepdiplomat Matt Walkers Ted talk portends my death ๐ฑ #narcolepsy
Join us on ๐๐๐ก๐จ๐๐ฅ๐ฌ ๐ฏ๐ฌ๐๐ต ๐ฎ๐ ๐ญ:๐ฌ๐ฌ ๐ฝ๐บ Eastern for this free, virtual event: ๐๐๐๐ ๐ฉ๐๐๐ ๐บ๐๐๐: ๐ต๐๐ ๐พ๐๐๐ ๐๐ ๐ป๐๐๐๐๐๐๐ ๐จ๐๐๐๐ ๐ซ๐๐๐๐๐๐๐๐๐ & ๐บ๐๐๐๐๐๐.
Register at #IH #Disability #narcolepsy #KLS
New pages up! New designs and new products coming soon! Designs for the following interests:
#narcolepsy #epilepsy #keto #carnivore #raregeneticdisorders #motivation #fitness #coffee #dogs #pitties #nature #outdoors #dance #sports #ThePurpleSneaker #smile
#StorySharing continues! Join us for our #live event tonight, 1/24 at 8pm ET!
#RisingVoicesofNarcolepsy speaker Kristen will share her #narcolepsy story, and we'll have a Q&A session afterward.
See you there!
Learn more and share:
Since #narcolepsy is a neurological disorder, it might seem strange that itโs listed as a diagnosis in a psychiatric manual under the category of sleep-wake disorders. Why are those categories there? Hereโs an explanation:
I drove for the first time in over 2 years and I didnโt zone out or fall asleep and Iโm going to continue driving with someone in the car to take over if necessary for awhile to be sure it wasnโt a fluke but Iโm really hopeful since my #narcolepsy is better medicated now. ๐ค๐ป
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