#Narcolepsy Twitter Tweets & Topics

Outside of my #Narcolepsy, #RLS, & #SleepApnea, I have lower back pains and a surgically repaired neck (titanium disk in neck). Does anyone recommend a mattress, or pillow, to help me be more comfortable while I sleep?

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@Akshay_Kewlani @MentalHRetweet Agreed. I earned my superhero pants. And one day I'd like to be able to face my fears without falling asleep in the process #Narcolepsy ๐Ÿ™‚๐Ÿค˜

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Members of MyNarcolepsyTeam often say "I'm Fine" when they're NOT because most people don't understand their struggles with #narcolepsy. See what else they're sharing in the MyNarcolepsyTeam resources section:

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Car Nap for Lunch! #dontjudgeme #sleepdisorders #thanksbob #sleepapnea #insomnia #narcolepsy #jknotnarcolepsy

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Sorry for a delay in updates, we had to get some sleep and ended up passing out without meaning to.

Gotta love sleep attacks. :/

Anyway, trying to get my brainwires to connect, please standby. โœจ- EJ

#SleepDisorders #IH #IdiopathicHypersomnia #Narcolepsy #SleepAttacks #Fatigue

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๐Ÿค“๐Ÿšจ LIVE in 5 minutes! #NarcolepsyNerdAlert, hosted by award-winning geek @RemRunner, kicks off at 1pm ET 1/27 on Facebook. Join us to explore unique aspects of the #narcolepsy experience. Today's topic: "Narcolepsy Roadmap." PLUS: prizes!

Tune in live:

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At Harmony, we appreciate the many members of the #narcolepsy community who have shared their knowledge, experience, and stories to help educate others and raise awareness of this #raredisease. Learn more ๐Ÿ‘‰ #WednesdayWisdom

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#Narcolepsy
#Nevermore
#DENIMS
#LASTDANCE
#Bialystocks
#Nevermore
#ใ‚ซใƒใ‚ณใ‚ขใƒคใƒŽ
#ๅ…‰ใฎๆ–นใธ

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There are over 300 Million people worldwide living with a rare disease.
Join in Raising awareness (info at )
#RareDiseaseDay #RareDisease #RareIsMany #RareIsStrong #RareIsProud #rare #ShowYourStripes #Narcolepsy #EhlersDanlosSyndrome #ImmuneDeficiency

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Thank you @anthonypadilla for covering #narcolepsy in your amazing "I Spent a Day with" series. I wrote to Anthony in November suggesting this topic, and it's SO cool to see this become a reality!

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"Don't wish to for things to be easier...wish that you were better." - Jim Rohn

#quoteoftheday #jimrohn #quote #WordOfTheDay #bloggers #narcolepsy #MotivationalQuotes

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Pandemic Linked With Increase in Nocturnal Sleep Time, Daytime Napping in Patients With #Narcolepsy Type 1:

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Studying #narcolepsy patients during one month of pandemic-related lockdown in Italy, researchers noted that patients working or studying from home exhibited an increase in nocturnal sleep time, reduced daytime sleepiness, and significant weight gain.

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#StorySharing continues this Sunday, 1/31 at 8pm ET with #RisingVoicesofNarcolepsy speaker, olympic weightlifter, and future veterinary neurologist Amanda! Tune in to Amanda's #narcolepsy story LIVE on Project Sleep's Facebook page.

Learn more and share:

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Prescription Adderallยฎ is the most abused medication among high school and college students. An abuse-deterrent solution is needed! #ADHD #Narcolepsy #StimulantAbuse #AbuseDeterrent

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#Narcolepsy: Symptoms, Determining the Cause, and Treatment Alternatives

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s/o @anthonypadilla giving my people some much-needed love #narcolepsy #narcoleptic

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๐Ÿ˜ด Strategies for developing an optimal treatment plan for adult #narcolepsy. Earn #CME in these virtual case-based scenarios.

#SleepHealth #PsychTwitter #NeuroTwitter

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"You're just doing too much... Somehow I knew that wasn't the full story."

#RisingVoicesofNarcolepsy speaker Kristen spent 25+ years being misdiagnosed, and now uses her pageant platform to spread critical #narcolepsy awareness. Video available now!

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reason as I get older to stop being so hard on myself.

I used to get so upset with how much sleep I needed. Embarassed / frustrated and hiding it at school and work when I'd fall asleep.

#ActuallyAutistic #narcolepsy

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๐Ÿค“๐Ÿšจ #NarcolepsyNerdAlert! Our new broadcast series starts THIS Wed, 1/27 at 1pm ET. Join @RemRunner and fellow #NarcolepsyNerds for our first topic: Narcolepsy Roadmap. Because navigating #narcolepsy doesn't come with a map, but it should!

More info:

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#Narcolepsy is a neurologic condition where the brain is unable to control sleep-wake cycles normally that can impact a personโ€™s everyday life. View real patient stories and learn more about this #sleepdisorder here:

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Sleep experts Drs Roth and Winkelman explore the differential diagnosis and treatment of narcolepsy in this CME journal activity.
#FREE #CME #sleep #narcolepsy

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This is an interesting open access review. Sleep paralysis is an interesting phenomenon - common #sleep symptom in community, connected to #narcolepsy, relevant to #PTSD

@ProfAMGregory @UniofOxford @OxSCNi

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Almost slept through the night! Then I randomly woke up at 5:30 ๐Ÿ˜“
At least it wasn't 5am...so small progress ๐Ÿค”๐Ÿคท
Back to bed to recharge, hopefully I can have a productive day.
#Insomnia #narcolepsy #sleepwakedisorder
#sleepdisturbance
#lowonspoons #spoons

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Missing out on memories is the worst part #Narcolepsy

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Does anyone else take medicine to help them sleep every night?

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๐Ÿ˜ด Strategies for developing an optimal treatment plan for adult #narcolepsy. Earn #CME in these virtual case-based scenarios.

#SleepHealth #PsychTwitter #NeuroTwitter

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#RisingVoicesofNarcolepsy speaker Kristen shares her #narcolepsy story #live in one hour, 8pm ET 1/24! Stick around for our Q&A session after -- and if you can't make it tonight, we'll have a recording available.

See you for #StorySharing soon!

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I am doomed, utterly doomed. @sleepdiplomat Matt Walkers Ted talk portends my death ๐Ÿ˜ฑ #narcolepsy

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Join us on ๐—๐—”๐—ก๐—จ๐—”๐—ฅ๐—ฌ ๐Ÿฏ๐Ÿฌ๐˜๐—ต ๐—ฎ๐˜ ๐Ÿญ:๐Ÿฌ๐Ÿฌ ๐—ฝ๐—บ Eastern for this free, virtual event: ๐’€๐’๐’–๐’“ ๐‘ฉ๐’†๐’”๐’• ๐‘บ๐’†๐’๐’‡: ๐‘ต๐’†๐’˜ ๐‘พ๐’‚๐’š๐’” ๐’๐’‡ ๐‘ป๐’‰๐’Š๐’๐’Œ๐’Š๐’๐’ˆ ๐‘จ๐’ƒ๐’๐’–๐’• ๐‘ซ๐’Š๐’”๐’‚๐’ƒ๐’Š๐’๐’Š๐’•๐’š & ๐‘บ๐’–๐’‘๐’‘๐’๐’“๐’•.

Register at #IH #Disability #narcolepsy #KLS

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New pages up! New designs and new products coming soon! Designs for the following interests:
#narcolepsy #epilepsy #keto #carnivore #raregeneticdisorders #motivation #fitness #coffee #dogs #pitties #nature #outdoors #dance #sports #ThePurpleSneaker #smile

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#StorySharing continues! Join us for our #live event tonight, 1/24 at 8pm ET!

#RisingVoicesofNarcolepsy speaker Kristen will share her #narcolepsy story, and we'll have a Q&A session afterward.

See you there!

Learn more and share:

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Since #narcolepsy is a neurological disorder, it might seem strange that itโ€™s listed as a diagnosis in a psychiatric manual under the category of sleep-wake disorders. Why are those categories there? Hereโ€™s an explanation:

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I drove for the first time in over 2 years and I didnโ€™t zone out or fall asleep and Iโ€™m going to continue driving with someone in the car to take over if necessary for awhile to be sure it wasnโ€™t a fluke but Iโ€™m really hopeful since my #narcolepsy is better medicated now. ๐Ÿคž๐Ÿป

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